We have brought together a team of patient representatives and researchers with expertise in the internet and healthcare, patient experiences, science and technology studies and in studying NHS organisations. We have worked closely with the NHS to improve its services in the past, and the lead researcher has an extensive track record working with NHS digital services.
Associate Professor, Health Experiences Research Group, Nuffield Department of Primary Care Health Sciences, University of Oxford
Professor John Powell is the lead researcher on the INQUIRE project. He is a public health physician and health services researcher who has been working in the area of ‘digital health’ for over 15 years, studying how information and communication technology can be used to improve health and health services. He is particularly interested in studying how new technologies are changing the role of the citizen in healthcare. He is an Honorary Professor at the University of Manchester, a Consultant Clinical Adviser at NICE, and a Research Associate at the Oxford Internet Institute. Also he is the Joint Editor-in-Chief of the SAGE journal DIGITAL HEALTH.
Assistant professor, Health Sciences, Warwick Medical School, University of Warwick
Helen Atherton is an Assistant Professor in primary care. As a health services researcher she specialises in applying research methodology to address the key issues facing primary care and general practice settings. Helen’s research interests are in digital health care and her particular expertise is in use of alternatives to the face to face consultation, such as email and video. She leads and/or collaborates across several studies, each with a focus on how communications technologies and the internet impacts on patients and healthcare professionals. She is an honorary research fellow at the Nuffield Department of Primary Care Health Sciences, University of Oxford.
Anya de Iongh
Patient leader and self-management coach
Anya de Iongh lives with several long-term health conditions, works as a self-management coach for an NHS service and is a patient leader. She is a regular blogger (thepatientpatient2011.blogspot.co.uk) and tweets (@anyadei) about her experiences as a patient and patient leader. In addition, she lectures medical and healthcare students at a number of universities, supports patient and public involvement in research projects with Wessex Collaboration for Leadership in Applied Health Research and Care (CLAHRC) in addition to her role with INQUIRE, and chairs a patient and public engagement group within Dorset Clinical Commissioning Groups (CCG).
Professor of Health Services Research
Louise joined the Health Services Research Unit in 2017, following 14 years in the Health Experiences Research Group, Nuffield Department of Primary Care Health Sciences, University of Oxford, where she was Director of Applied Research. She is a qualitative social science researcher interested in personal experience of health and illness; patient-centred quality improvement and co-design; and patient and family involvement in research and care. A major recent focus of her work has been how we can better use different types of patient experience data to improve care.
Director of the Oxford Internet Institute and Professor of Society and the Internet at Oxford
Helen Margetts is a political scientist specialising in digital era governance and politics, investigating political behaviour, digital government and government-citizen interactions in the age of the internet, social media and big data. She has published over a hundred books, articles and major research reports in this area. She sits on the World Economic Forum Global Agenda Council on the Future of Government and is editor-in-chief of the journal Policy and Internet. She is also a fellow of the Academy of Social Sciences.
Chancellor’s Fellow in Science, Technology and Innovation Studies (STIS) at the University of Edinburgh
Fadhila Mazanderani’s research sits at the intersection of Science and Technology Studies (STS), Medical Sociology and Anthropology. Her current research centres on the production and mediation of alternative forms of knowledge and ways of knowing in healthcare. She has a particular interest in exploring how people affected by serious illness use digital technologies in relation to their health and the implications this use has for them, their families, communities and contemporary healthcare more generally.
Senior Research Fellow in Marketing, Saïd Business School, University of Oxford; Professor of Science and Technology Studies, Linköping University, Sweden
Steve Woolgar has expertise within the field of Science and Technology Studies (STS), including governance and accountability relations, mundane objects and ordinary technologies, visualisation and evidence, social theory and the use of neuroscience in business and management. Steve’s current work focuses on the areas of mundane governance, neuromarketing, web-based rating and ranking schemes, and the dynamics of provocation and intervention.
Professor of Medical Sociology and Director of the Health Experiences Research Group (HERG)
Sue Ziebland is Professor of Medical Sociology and Director of the Health Experiences Research Group (HERG), in the Nuffield Department of Primary Care Health Sciences. The group specialises in qualitative methods of understanding health experiences and using the understanding for experience- based health information, clinical education and service improvements. Sue has worked as a researcher in the academic, NHS and voluntary sectors and has published over 200 papers and chapters in social science and health publications. Sue was invited (by Ann McPherson) to be involved in the DIPEx (now Healthtalk) project in 1999. Since then Sue has worked closely with colleagues in HERG and the DIPEx charity to develop the methods used in the projects and raise funding for the research. Sue’s other current research interests include how the internet is changing health care, through access to health information, through the opportunity to comment on services and how the web is changing patients’ relationships with health professionals, including how they consult with GPs. c. Sue Ziebland is Professor of Medical Sociology and Director of the Health Experiences Research Group (HERG), in the Nuffield Department of Primary Care Health Sciences. The group specialises in qualitative methods of understanding health experiences and using the understanding for experience- based health information, clinical education and service improvements. Sue has worked as a researcher in the academic, NHS and voluntary sectors and has published over 200 papers and chapters in social science and health publications. Sue was invited (by Ann McPherson) to be involved in the DIPEx (now Healthtalk) project in 1999. Since then Sue has worked closely with colleagues in HERG and the DIPEx charity to develop the methods used in the projects and raise funding for the research. Sue’s other current research interests include how the internet is changing health care, through access to health information, through the opportunity to comment on services and how the web is changing patients’ relationships with health professionals, including how they consult with GPs.
Sue is also a senior research fellow at Green Templeton College and in 2013 she was appointed as an NIHR Senior Investigator (renewed 2017). In May 2017 Sue was appointed as Programme Director for NIHR Research for Patient Benefit.
Researchers at University of Oxford
NIHR Collaboration for Leadership in Applied Health Research and Care (CLAHRC) Research fellow, the Health Experiences Research Group, Nuffield Department of Primary Care Health Sciences
Anne-Marie explores the use of online patient feedback in influencing UK Health Policy, and service delivery and improvement. This work is synergistic with the aims of the INQUIRE project. Her research largely focuses on people’s experiences of conditions that affect their health and wellbeing, with a particular interest in acquired brain injury. She also has an interest in involving patients or members of the public in health research and has worked with Louise Locock on a Biomedical Research Centre funded project on patient and public involvement (PPI) in health/medical research from patients and researchers’ perspectives.
Senior Research Fellow at the Oxford Internet Institute and Associate Professor at the Department of Education, University of Oxford
Rebecca’s research focuses on education, learning and inequalities, and she has carried out projects in a range of settings (higher education, schools and the home) and life stages (childhood, adolescence and late adulthood). She is co-editor of Learning, Media and Technology and has published a number of academic articles, reports and conference papers. Her work has been supported by a range of funders including the BECTA, the Economic and Social Research Council, the European Commission, Google and the NominetTrust. She is also a lecturer for the MSc Education (Learning and Technology) and supervises DPhil students interested in learning, education and / or digital exclusion.
Senior qualitative researcher, the Health Experiences Research Group, Nuffield Department of Primary Care Health Sciences
Susan Kirkpatrick is a senior qualitative researcher specialising in personal narratives about experiences of health and illness (now retired). She has led three projects for the health experiences website healthtalk.org on; being diagnosed with a minor stroke/TIA (transient ischaemic attack), the experience of living with asthma, and experiences of using antidepressant medication. She has also led an ESRC funded project conducting secondary analysis of a number of healthtalk interview collections in order to develop ‘trigger films’ for use in an experience based service improvement process (EBCD), and has also recently completed a series of interviews with people about using nebulisers for Cystic Fibrosis, as part of the development of a new intervention to help improve treatment adherence, in collaboration with researchers from University of Sheffield. Her work for INQUIRE focussed on patient and carers’ perspectives of creating and using online feedback.
Michelle van Velthoven
Sir David Cooksey Fellow in Healthcare Translation, Department of Paediatrics, University of Oxford
Dr Michelle van Velthoven is an inaugural Sir David Cooksey Fellow in Healthcare Translation at the University of Oxford. Her research areas of interest are: 1) regulation and standards for the safety and quality of digital health; 2) the (cost-)effectiveness of digitally-delivered interventions; 3) factors influencing adoption and abandonment of digital health in different settings. In addition to her fellowship, Michelle is a Research Associate at Wadham College, external researcher at the IMD Business School, associate and social media editor for the SAGE journal DIGITAL HEALTH, and an advisory board member for the app SPACE, which aims to help people use their smartphone in a healthy and productive way.
Research fellow in digital health, the Health Experiences Research Group, Nuffield Department of Primary Care Health Sciences
Veronika’s research focuses on the experiences of people living with a long-term condition (with a particular interest in chronic respiratory disease and older people) and how we can support their self-management and health care needs with a focus on digital health. Her research predominantly involves qualitative research methods, but she also has expertise in working on qualitative studies embedded within clinical trials and mixed methods research. She is also an external collaborator on the Wellcome Trust Senior Investigator award project: Life of Breath, (Carel, Bristol & Macnaughton, Durham). She is an executive member and past treasurer of the British Society of Gerontology.
Postdoctoral researcher in digital health, the Health Experiences Research Group, Nuffield Department of Primary Care Health Sciences
Farzana Dudhwala is a researcher with expertise in the field of Science and Technology Studies (STS). Her previous research involved a four year ethnography with the ‘Quantified Self’ to understand the ways in which self-monitoring and self-quantifying technologies are implicated in the ‘doing’ of the self. She is interested in theories of agency, performativity, multiplicity, and enactment. Farzana is also a member of the strategic advisory group of the Association for Studies in Innovation, Science and Technology (AsSIST-UK).
Patients, carers and public reference group
Chair of the Patients, Carers and Public Reference Group
Douglas Findlay is an enthusiastic advocate of the NHS; he campaigns as a patient/carer advocate. He cared for both his parents during 2013 until their deaths in 2014 and since that time has taken an active role in a number of NHS organisations, including volunteering as a patient leader at the Royal Berkshire NHS Foundation Trust and as a board member of Healthwatch Reading. He worked in food development with Marks and Spencer for 10 years. He then re-trained and worked as a high school teacher, teaching Food Science and Health Education. Douglas has worked in and with the Pharmaceutical and Medical Technology industries, initially as a science officer, then as a partnership manager, a regional adviser and finally as a learning and development specialist training consultant for an eLearning provider.
Programme co-ordinator, Health Experiences Research Group, Nuffield Department of Primary Health Care Sciences, University of Oxford
Angela is the Health Experiences Research Group Operations Manager. Her role straddles research, strategic and operation management functions. She has recently completed her work as the programme coordinator for a 5 year NIHR Programme Grant (iPEx) which studied whether, when and how the NHS should incorporate people’s experiences into on-line health information. She now coordinates a portfolio of studies within the Health Experiences Research Group including the related US-PEx study (Understanding how frontline staff uses patient experience data for service improvement).